Living with a shunt is like living with a fussy roommate—you always have to be aware of their moods, and they never leave.

Here are some real-life survival tips I’ve learned over the years:

Know your baseline. Once you know what “normal” feels like for you, it’s easier to tell when something’s off.

Hydrate, hydrate, hydrate. Dehydration can make symptoms worse. Trust me, water is your best friend.

Keep a medical card or digital note in your phone with your diagnosis, type of shunt, and emergency contacts.

Rest when you need to. Fatigue is real with hydrocephalus. Don’t fight it. Nap like it’s your job.

Speak up. Whether it’s with doctors, teachers, or bosses, advocate for yourself or your child. You know your body best.

There’s no manual for this life—but we learn as we go. And it’s okay to take things one day at a time.