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After countless scans, hospital stays, and close calls, I made a choice: instead of letting this condition hold me back, I’m using my story to connect with other warriors and spread awareness.
Through my blog, streams, and adventures, I want to show that life with chronic illness isn’t just about surviving—it’s about living fully, chasing joy, and proving every single day that we can create a beautiful life, no matter the odds.
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The Conditions You Can’t See—But I Live With Every Day
Living, Healing, and Advocating with Invisible Illnesses
I’ve been diagnosed with Obstructive Hydrocephalus, Chiari Malformation Type I, and Epilepsy—three conditions that completely changed the way I live, move, and advocate. These are invisible illnesses, but they are real, relentless, and life-altering.
Despite it all, I push through, every single day. My VP shunt helps keep me alive. My journey with brain surgery, disability, and misunderstood symptoms has taught me the value of empathy and education.
This isn’t just my story—it’s a mission to raise awareness, fight stigma, and show others they’re not alone.
Hydrocephalus
Type: Acquired / Obstructive
Hydrocephalus causes a buildup of fluid in the brain. For me, it means relying on a shunt system to keep that pressure regulated—without it, my life is at risk. It’s invisible, but it’s always there.
Chiari Malformation
Type I (Non-decompressed)
Chiari affects the brain where it meets the spine, and mine causes pain, pressure, and neurological symptoms. Though I haven’t had decompression surgery, I live with the weight of its impact every day.
Epilepsy
Type: Partial Complex Seizures
Before being seizure-free for over five years, I experienced complex partial seizures that disrupted daily life. While I no longer seize, I never forget how unpredictable and misunderstood epilepsy can be.
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