My story
Hi, I'm CT.
I have hydrocephalus, a VP shunt, and epilepsy that showed up after a surgery that shouldn't have gone the way it did.
I started Shunt Happens because I couldn't find anyone talking about the parts nobody puts in the pamphlet: the fear before every scan, the shunt-failure symptoms doctors miss, and the grief of a body that needs hardware to survive.
tHE sHORT vERSION
If something feels wrong, it's worth getting checked.
Shunt problems can look subtle and get missed. Know the warning signs, call your neurosurgeon, and if no one will listen, get another opinion.
In chapters
How I got here
Hi, I'm CT.
I have hydrocephalus, a VP shunt, and epilepsy that showed up after a surgery that shouldn't have gone the way it did.
I started Shunt Happens because I couldn't find anyone talking about the parts nobody puts in the pamphlet: the fear before every scan, the shunt-failure symptoms doctors miss, and the grief of a body that needs hardware to survive.
The word "hydrocephalus"
I have hydrocephalus, a VP shunt, and epilepsy that showed up after a surgery that shouldn't have gone the way it did.
I started Shunt Happens because I couldn't find anyone talking about the parts nobody puts in the pamphlet: the fear before every scan, the shunt-failure symptoms doctors miss, and the grief of a body that needs hardware to survive.
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Starting over in every sense of the word
I have hydrocephalus, a VP shunt, and epilepsy that showed up after a surgery that shouldn't have gone the way it did.
I started Shunt Happens because I couldn't find anyone talking about the parts nobody puts in the pamphlet: the fear before every scan, the shunt-failure symptoms doctors miss, and the grief of a body that needs hardware to survive.