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I’m Courtney (CT) — a brain surgery survivor, mom, blogger, web designer, gamer, and adventurer.

 

This is my corner of the internet where I share what life looks like after multiple brain surgeries and living with a chronic illness. I speak up for the hydrocephalus community and remind others navigating shunt life that sh!t happens but no matter what, keep pushing forward.

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The Wannabe Blogger

I have always wanted to be a successful blogger but.... I struggle to stay consistent.

Managing Hydrocephalus Shunt Issues Effectively: Shunt Management Tips You Can Trust

  • 3 days ago
  • 4 min read

Living with a hydrocephalus shunt can feel like walking a tightrope sometimes. One day, everything seems fine, and the next, you might notice discomfort or symptoms that make you wonder if something’s off. I get it. Managing a shunt isn’t just about medical appointments and scans; it’s about tuning in to your body, knowing what to watch for, and having a game plan when things get tricky. So, let’s dive into some practical, warm, and straightforward shunt management tips that can help you feel more in control and less overwhelmed.


Shunt Management Tips: Staying Ahead of the Curve


First things first: managing a shunt is a team effort. You, your healthcare providers, and your support system all play a role. Here are some tips that have helped many people, including myself, keep things running smoothly:


  • Know your baseline. What does “normal” feel like for you? Keep a journal or notes on your symptoms, energy levels, headaches, or any changes. This makes it easier to spot when something’s different.

  • Stay hydrated and eat well. It might sound basic, but your body needs good fuel to function well. Dehydration or poor nutrition can sometimes mimic or worsen symptoms.

  • Avoid head trauma. This one’s obvious but worth repeating. Protect your head during activities and be mindful of your surroundings.

  • Keep regular appointments. Even if you feel fine, routine check-ups can catch issues before they become emergencies.

  • Ask questions. Never hesitate to ask your doctor about anything you don’t understand. Your peace of mind matters.

  • Have an emergency plan. Know who to call and where to go if you suspect shunt malfunction or infection.


Remember, these tips aren’t just rules; they’re tools to help you live your life fully and confidently.


Close-up view of a medical notebook with handwritten symptom notes
Keeping track of symptoms helps in shunt management

Why Does My Shunt Hurt?


Pain around the shunt site can be scary. I’ve been there, and I know how unsettling it feels. But understanding why your shunt might hurt can help you decide what to do next.


  • Infection: One of the more serious causes. If the area around the shunt is red, swollen, warm, or tender, and you have a fever, get medical help right away.

  • Shunt malfunction: Sometimes the shunt can get blocked or fail to drain properly, causing pressure buildup and pain.

  • Skin irritation: The tubing or valve under the skin can sometimes cause irritation or discomfort, especially if you’ve had recent surgery.

  • Growth or movement: For kids or young adults, growth can sometimes cause the shunt to shift or stretch, leading to discomfort.

  • Muscle strain: Believe it or not, sometimes the pain isn’t from the shunt itself but from muscles around the area reacting to posture or activity.


If you’re experiencing pain, don’t just tough it out. Reach out to your healthcare provider. They can help figure out the cause and get you the right treatment.


Eye-level view of a hospital corridor with medical staff walking
Hospital corridor where shunt evaluations often take place

Spotting the Signs: When to Seek Help


It’s easy to second-guess yourself when it comes to symptoms. Is this headache normal? Am I just tired, or is something wrong? Here’s a quick checklist of signs that should prompt a call to your doctor or a visit to the ER:


  • Sudden, severe headache that’s different from your usual headaches

  • Nausea or vomiting without an obvious cause

  • Changes in vision, like blurriness or double vision

  • Drowsiness, confusion, or difficulty waking up

  • Fever with shunt site redness or swelling

  • Neck stiffness or pain

  • Seizures or unusual movements

  • New weakness or numbness in limbs


Trust your gut. If something feels off, it probably is. And remember, it’s better to be cautious than to wait too long.


Practical Tips for Daily Life with a Shunt


Living with a shunt doesn’t mean you have to live cautiously all the time. Here are some everyday tips that can make life easier and safer:


  1. Wear a medical ID bracelet. It can be a lifesaver in emergencies.

  2. Keep a list of your medications and doctors. Have it handy for appointments or unexpected visits.

  3. Avoid heavy lifting or strenuous activities without guidance. Your shunt needs some TLC.

  4. Use gentle head and neck movements. Sudden jerks or impacts can cause problems.

  5. Educate your close friends and family. They can help spot symptoms and support you.

  6. Join support groups. Sharing experiences with others who understand can be incredibly comforting.


These small steps add up to big peace of mind.


Navigating Hydrocephalus Shunt Problems with Confidence


If you ever find yourself Googling “hydrocephalus shunt problems,” you’re not alone. It’s a common part of the journey, and it’s okay to feel overwhelmed. The key is to stay informed, stay connected with your healthcare team, and remember that you’re not defined by your shunt.


Managing a shunt is about balance - between vigilance and living your life. It’s about knowing when to act and when to breathe easy. And above all, it’s about being kind to yourself through it all.


If you want to learn more or connect with others facing similar challenges, check out resources like hydrocephalus shunt problems for support and information.


You’ve got this. One day, one step, one shunt management tip at a time.

 
 
 

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