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I’m Courtney (CT) — a brain surgery survivor, mom, blogger, web designer, gamer, and adventurer.

 

This is my corner of the internet where I share what life looks like after multiple brain surgeries and living with a chronic illness. I speak up for the hydrocephalus community and remind others navigating shunt life that sh!t happens but no matter what, keep pushing forward.

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Storms, Barometric Pressure, and Life with a Shunt

Oct 3
2 min read

When you live with hydrocephalus and a shunt, a change in the weather can mean more than changing your plans. Some of us notice headaches or worsening symptoms when storms roll in—and that deserves a conversation.


What is barometric pressure?

Barometric pressure is the pressure exerted by the air around us. It changes with weather systems and often drops as a low-pressure system or storm approaches. These changes can trigger headaches or migraine attacks in some people. That means symptoms may begin before the rain or thunder even arrives.


For example, imagine a warm, sunny afternoon followed by an approaching thunderstorm. As the weather shifts, someone sensitive to those changes might develop a headache, nausea, or light sensitivity while everyone else is still enjoying the day.


Where does a shunt fit into this?

A shunt helps drain cerebrospinal fluid—the fluid surrounding the brain and spinal cord—to another part of the body. Its valve helps regulate that drainage.


The Hydrocephalus Association recognizes weather and barometric pressure changes as possible influences on fluctuating symptoms. However, a headache during a storm does not automatically mean your shunt is malfunctioning.


It also does not prove that your brain pressure has risen or fallen, or that the weather has changed your shunt’s drainage. Weather-triggered migraine, shunt-related headaches, and other causes can have overlapping symptoms. Figuring out the cause may require medical evaluation.


What can help on weather-sensitive days?

For familiar symptoms, follow the plan you’ve discussed with your healthcare team. Staying hydrated, keeping a consistent sleep schedule, and resting in a quiet space with less light and noise may help. Tracking symptoms alongside weather changes can also give your care team useful information—especially when you record sleep, stress, and activity too.


But please don’t write everything off as “just the weather.”


New, unusual, persistent, or worsening symptoms deserve prompt medical advice. Severe or rapidly worsening headaches, repeated vomiting, new vision changes, confusion, major balance changes, or difficulty waking up require immediate medical attention. If you suspect a shunt malfunction, seek help immediately—even if there’s a storm outside.

Living with a shunt means learning your patterns while staying alert to changes. Your symptoms deserve to be taken seriously, whether the forecast shows sunshine or thunderstorms.


The weather may be outside our control. Being heard and having a care plan shouldn’t be.


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