Think your shunt might be failing? Don't wait. See the signs that need the ER now.
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Diagnosed? Yes.
Disabled? Sure.
Determined to keep living? Absolutely.
Hydrocephalus · VP shunts · Epilepsy
Life with a shunt, told by someone who has one.
I'm CT. After multiple brain surgeries, this is where I share what life with hydrocephalus and a VP shunt has really been like for me: the scan anxiety, the symptoms that got missed, and the wins nobody puts in the pamphlet.
THEN & nOW
My road so far
Five chapters, one shunt.
The diagnosis
The surgeries
Epilepsy enters
Starting over
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Living loud
Where are you right now?
Everyone's road with hydrocephalus looks different. Pick the spot that feels closest and start there. (Please bear with me as I update slowly)
Just diagnosed
What hydrocephalus is, what a shunt does, and what to ask first.
Facing surgery
Prep, the hospital bag, and what recovery honestly felt like.
Living with a shunt
Everyday life, travel, work, gaming, and a drink with friends.
Something feels off
Malfunction signs, headaches vs. migraines, and advocating for myself.
Caregivers & loved ones
What this life feels like from the inside, and how to help.
Trust your gut
If something feels wrong, it's worth getting checked.
Shunt problems can look subtle and get missed. Know the warning signs, call your neurosurgeon, and if no one will listen, get another opinion.
